I have spoken too soon
Remember this entry?
Well, we have a problem.
Last November, when Willa was first diagnosed with Cold Induced Urticaria we weren't sure what to expect. We gave her medicine almost every night for months. The medicine made it more manageable. If it wasn't too cold Willa could even play outside for a few minutes. But, it was a constant concern.
She had hives all the way through May. Basically, if it was 55 degrees or less, she got hives.
They never really seemed to bother her though. Occasionally she would tug at her ears, but that's it. The summer was great because I spent three months never having to worry about the urticaria. We had a couple of instances where Willa went swimming in a relatively cold pool, and she didn't get any hives. I stupidly took that to mean her urticaria was getting better. I convinced myself that it was getting better, that it wasn't a big deal.
Then, a few weeks ago it was 55 degrees and cloudy outside. I took Willa and Dexter on a long walk. About halfway through the walk Willa started to get some hives. I headed home, but we were about 20-30 minutes away at that point. Willa started to cry and and pull at her hands which were now swollen and covered in hives. She kept saying "Mommy, it hurts!" I was helpless.
Here are some pictures:
I was completely traumatized. Completely.
I had to deal with the reality- Willa has Urticaria. She might outgrow it, but that usually happens after 5-7 years. She's only had it for a year. She might never outgrow it.
We can't live in Manhattan where you have to walk everywhere.
Urticaria is rarely life-threatening, but there is something instinctual that happens when I see my kid swollen and covered in hives- I feel like I must fix it.
I can't fix this.
After that traumatizing episode I completely freaked out. I told my husband that we should move to California. In my usual psychotic fashion I started researching towns in California.
For a few weeks I was spending my time applying to pre-schools in Manhattan, while simultaneously looking at pre-schools in California. I was driving myself insane. I had to cover all the bases. I didn't really want to move to California. I mean, if I could convince all of my friends and family to move there, I totally would, but our entire life is on the East coast.
I was praying fro a miracle.
So finally, my husband and I had a long talk.
We both finally said the words "We can't move to Manhattan."
And I was relieved and heartbroken all at once.
And then we decided we would compromise. We aren't moving to Manhattan. We aren't moving to California. We are staying in the town where we have lived for the past year and a half.
Here is how I feel about that:
As much as I am a mature, responsible adult, I still have childish fantasies. I wanted to live in Manhattan. I wanted to hang out with my friends all the time. But this isn't an episode of Friends. Perhaps I am mourning the loss of my fantasy instead of the reality. Sure, if I lived in Manhattan I probably would have seen my friends more often, but not that much more often. They all work a ton. And who's to say that a bunch of them won't move out to the suburbs too.
The town and the area we live in is fantastic for kids. There's no denying that.
True, I wrote before about how I felt like I didn't fit in here, but maybe I need to make more of an effort. Maybe I need to go to some of the vegetarian meetups in the area so I can meet other like-minded people. Also, the mother's helper has only been here a few times, but already I can see what a huge impact having a little help can have on me. I think that if I have a little help, and spend a little time on myself, I'll be much happier.
I still hate that my husband works 10-12 hours a day and then spends another 2 hours a day commuting, but we have to do what's best for our kid.
At least here I can take her from the house to the car, and from the car to the library, or the Y, or the store, etc. As opposed to Manhattan where you have to walk everywhere.
And as much as we were willing to spend extra money to live in Manhattan, it makes so much more sense financially to stay here. To not have to constantly worry about money will be nice.
I must admit, it's always been great being able to say I grew up in Manhattan. There's something special about it. I wanted that for Willa too.
I still have doubts about whether or not we should be staying here. I don't like the idea of my kid having to take medicine every day for 6 months out of the year. Plus, I HATE the cold. I wouldn't mind living in a place that's warm. However, our whole support system is here, and we don't think it makes sense to start a new life on the other side of the country when there's a possibility that Willa might outgrow this in a few years. We want Willa to grow up surrounded by her Aunts, Uncles, Cousins, and Grandparents.
The weird thing about all of this is that I have absolutely no resentment towards Willa. I would do anything for her. She's getting so big, but she's still so small and fragile. I must protect her. And the only way I can sleep at night is if I know I'm doing what's best for her.
This is what's best.
I am trying my hardest to make the best of this situation. To be excited about the prospect of living in a bigger place, of not having to deal with all of the Manhattan school drama (I will write a post about that one day), of enjoying nature.
Manhattan is my home. It always will be. But maybe it is/was my childhood home. Maybe it's time for me to stop clinging to my childhood. Maybe this new town can be my grownup home. Maybe I just need to give it a chance.




Comments
Oh sweetie, my heart breaks for you guys. I wish I could make it better. But clearly you are doing what's best and will continue to do what's best, hell or high water.
Doesn't make it any easier, though.
Posted by: Aimee Greeblemonkey | October 15, 2009 03:53 PM
That's it, we're building a Habitrail(TM) for you guys.
Posted by: Paul | October 15, 2009 03:57 PM
Paul, tires and skunks.
Posted by: torrie | October 15, 2009 04:03 PM
You need to get a place in Boca Raton and become a Snowbird. Like Seinfelds parents.
Posted by: WIlliam | October 15, 2009 04:30 PM
Doing what's right doesn't always feel good, but knowing you are doing what is best for your child feels good where it counts. I know this is hard. This is what is best *for now*.
Being grownup kinda sucks, though. ;)
xo
Posted by: Sarah | October 15, 2009 04:55 PM
Well - I'm glad you are staying here - and I agree - being a grown up really bites sometimes.
Posted by: Cass | October 15, 2009 05:10 PM
Well that just sucks.
Posted by: Brian | October 15, 2009 05:38 PM
If NY becomes unbearable for Willa, what about Florida, or somewhere as far north on as North Carolina...just on the east coast? I grew up in FL, so I promise that it is NEVER cold. It's also closer and you can get super cheap flights! Hopefully this winter won't be too hard on Willa :)
Posted by: Shayna | October 15, 2009 06:49 PM
Not sure how you feel about the Mid-South, but I used to live in Nashville and it is a wonderful, WONDERFUL place to be. Medical facilities everywhere (seriously, for the hubs), temps are warm to moderate, people are surprisingly liberal, and the schools and home values are excellent.
Plus? It's really central for flights, in case you need to visit people you miss. :)
Sorry you're going through a feeling of loss. Hope everything turns itself right soon.
Posted by: Jamie | October 15, 2009 08:02 PM
Oh my goodness, poor Willa!
Just because you can't move back to Manhattan now, doesn't mean you won't some day. And maybe that someday, Willa will tell all her city friends that she grew up outside the city - it can be equally great!
Posted by: Jenski | October 15, 2009 08:27 PM
oh Torrie, I'm so sorry. I know you were so excited about the possibility of moving back to the city. I hope that you guys can find happiness where you are.
Posted by: Jen | October 15, 2009 10:55 PM
oh, torrie, i am so sorry for her and for you, but so glad you were able to make the decision to stay and know it is the right thing for now.
it is crazy how once you become a parent, things just shift and change and become them. if you do move west and end up near l.a. you can looks me up.:)
Posted by: mamie | October 15, 2009 11:45 PM
Seeing pics of Willa's hives made my heart break. Poor girl:(
I think you have the right attitude about it all though - the moving thing - trying to make the best of it.
Posted by: Farrell | October 16, 2009 10:45 AM
I have to live in the world's lamest suburb so that I can afford to stay home with my kid, and it really blows sometimes. I'm also having a hard time fitting in. But at the end of the day it is all so worth it to be with my son...they'll only be young once.
Posted by: Uppahand | October 16, 2009 03:14 PM
You made me cry. :(
Posted by: Ange | October 16, 2009 04:57 PM
Poor Willa. I so get the "fix-it" thing you mentioned. To know it's hurting her and there's nothing you can do must just be awful.
I hope you can find a way to make staying where you are a positive experience for both you and Willa.
Posted by: Pocklock | October 16, 2009 05:21 PM
Your weak. Do whats truly right for your child and move to a climate that is healthy for her.
Posted by: Treny | October 18, 2009 08:48 PM
Hang in there. It gets sooooo much better. I had this as a child and always lived in cold climates, so I dealt with it half the year--untreated. I have so much respect that you're making the hard decision. As she gets older, the hardest part is managing the 'social' aspect: it's hard having a scary rash among grade schoolers and uneducated teachers. It does get better...
Posted by: Julie K | October 23, 2009 05:34 AM
you are an amazing mother and you know what...maybe the suburbs can learn something from you!
Posted by: rachel | October 30, 2009 09:01 PM
I know that your husband is a doctor and so this may not be in line with your feelings about medicine etc, but I strongly suggest that you visit a Homeopath. They can work wonders with these kinds of things. Both eczema and asthma are frequently 'cured' after a trip to the homeopath. It certainly won't do Willa any harm and, who knows, maybe it'll be the thing that brings you both some relief.
Posted by: Melissa | November 2, 2009 02:53 PM
I only now just stumbled across your blog (I totally hate everything too). I have always experienced long itchy bouts of urticaria and eczema when living in cold and humid places. The ten years I lived in Southern CA from 25 to 35 was the only time in life I was rash-free. So if the urticaria does turn into a long term thing DO think about arid parts of California actually. The Southeast is too humid. Secondly, homeopathic and holistic remedies is what finally worked for me. Doctors could only prescribe strong steroid creams which are no good long term. I found success with a regimen of Milk Thistle extract in water 3-4 times a day during outbreaks and I use Hyland's "Skin" and "Allergy" homeopathic combinations. Milk Thistle cleans the liver and there's a link between toxins in the liver and these skin conditions. I just know it works. All of these things are safe for children but find the Milk Thistle in a glycerine base not alchohol. Good luck!
Posted by: jeanneoe | November 27, 2009 10:10 AM